Our History
The diagnosis of epilepsy alone is not sufficient. It is essential for the person facing epilepsy to also receive attention for the psychosocial effects that epilepsy bring with it.
Help us make a difference
Stichting Epilepsie Curaçao Naïria Winklaar, invites you to become our ambassador and help us spread knowledge and awareness about epilepsy/seizures in Curacao.
At the heart of the Stichting Epilepsie Curaçao Naïria Winklaar tells a strong and emotional story, a tale of a mother’s love, loss, and determination to make a difference.
Bruna’s life changed completely when her firstborn, the beautiful and vibrant Naïria, was diagnosed with epilepsy. Like any mother, Bruna felt desperate and helpless in the complex world of epilepsy care. Never before had Bruna heard of epilepsy. Occasionally, Bruna had heard of djimpi, but djimpi were something entirely different for Bruna than what she saw happening to her daughter.
While Naïria bravely fought the challenges that epilepsy brought into her life, Bruna became her staunchest advocate.
Unfortunately, Naïria’s battle with epilepsy ended too early due to SUDEP (Sudden Unexpected Death in Epilepsy). Naïria’s passing left her mother with a broken but determined heart to honor her daughter’s memory.
