Our Focus
The focus of Stichting Epilepsie Curacao Naïria Winklaar is on the psychosocial aspect that individuals are confronted with when they have been diagnosed with epilepsy.
Why does the Stichting Epilepsie Curacao Naïria Winklaar focus on the psychosocial aspect?
After a person leaves the doctor/specialist and receives the diagnosis of epilepsy for themselves or a family member, they will likely get a prescription for medication, appointments for tests, and a schedule for the next visit to the doctor.
Then the question(s) arise:
- How do I continue with my life?
- How do I navigate life with epilepsy?
- I am afraid of having another seizure! This fear dominates my life.
- I am afraid my child will have a seizure at school, and he/she might get hurt.
- How do I create a balance for my child to continue being a child and doing normal kid things while protecting him when he has an epileptic seizure?
- What will people at work say if they know I have epilepsy? Can I let my child continue playing outside?
- Can I let him sleep alone?
Stichting Epilepsie Curacao Naïria Winklaar goal is to empower individuals confronted with epilepsy with relevant information, knowledge, and the necessary guidance, so they can manage their lives with epilepsy and create opportunities for them to participate in our community just like everyone else.”
What is psychosocial distress?
Psychosocial distress is a combination of psychological concerns related to your feelings and thoughts and the social aspect tied to your relationships with other individuals or entities. Psychosocial concerns can lead to headaches, heart palpitations, sleep disturbances, depression, and even suicidal thoughts. Individuals often experience psychosocial issues to be more challenging than the seizures themselves.
